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Home>Service> Awardees of Fervent Global Love of Lives Award> 25th Fervent Global Love of Lives Award 2022> A smiling angel of rare diseases - Yu, Sin-Ciao
A smiling angel of rare diseases - Yu, Sin-Ciao
[Show your dreams with a brush, fight against rare disease with a smile]
In a society, as long as we are willing to reach out and give opportunities to others, we still have the chance to enjoy a sense of achievement and the beautiful life value in our journey of life.
—Yu, Sin-Ciao

   Yu, Sin-Ciao is currently a freshman in the Department of English for Global Communication at HungKuang University. She was born in June 2001 and diagnosed with "mitochondrial defect" at the age of merely eight months.
        Little Sin-Ciao could sit up on the foor with the support of hands until a year and a half old.
       It was not until she was six years old that she could speak out the words - Mommy, I love you.
    Sin-Ciao crawled her way into nine years old before she can stand.
        When she was 15 years old, she could hold hands with others and walk for a short distance slowly.
   Sin-Ciao is working hard every day for rehabilitation for her only wish - that is, she wants to be able to walk for at least one day.
   Before the age of 17, everyone believes that she has agranulocytosis. But on March 11, 2019, she was diagnosed as "Spinocerebellar ataxia 29 (SCA29) ", resulting in multiple disorders of language, intelligence and limbs.
  Life always imposes new challenges on Sin-Ciao, but she never gives up her goal and makes a vivid and colorful description of her observation and feeling of the world with vibrant colors.
  Therefore, although Sin-Ciao is trapped by diseases, she is still full of positive energy. She hopes that through the sharing of paintings and life experience, more people will learn about this rare disease and people with multiple disabilities. As long as everyone is willing to give help and one more chance, these people still have the opportunity to get a sense of achievement and beautiful life value in this life-long journey.
  Yu, Sin-Ciao's rare disease is one out of a million. But she uses her smile to create her own miracle. With paintings to illustrate her inner world, speak out her love for life and speak for those suffered from rare diseases. She has also donated her precious long hair to the vulnerable cancer children for many times, acting just like a "smiling angel". Finally, she stood out from 2954 candidates recommended by all walks of life around the world and won the "2021 24th Fervent Global Love of Lives Award" of Taiwan Chou Ta-kuan cultural and educational foundation.
    We always welcome all circles around the world to recommend life warriors that are hard-working, loving, courageous and with achievements. (recommendation line of Chou Ta-kuan cultural and educational foundation's  Fervent Global Love of Lives Award: 886-2-29178770, Fax: 886-2-29178768, Address: 3F., No.52, Mingde Rd., Xindian Dist., New Taipei City 231, Taiwan (R.O.C.), Website: http://www.ta.org.tw, e-mail: ta88ms17@gmail.com )

The day she wanted to walk
    In the first two months after Sin-Ciao was born, her mother only thought that she was such a good kid that seldem cried, and just slept all the time. Even the doctors who gave her vaccination didn't find anything unusual.
    When she was three months old, her family found that Sin-Ciao's head and neck had been shaking all the time and couldn't stand up, and her eyes often rolled upward. The doctor suggested that she should take an examination when getting a little older, so that the results would be more accurate.
    So, at the age of eight months, Sin-Ciao's mother took her to Taichung Veterans General Hospital for EEG, MRI and bone marrow fluid examination, and it turned out to be "granulosome deficiency", a disease that still had no radical cure so far. But the medical community's understanding of mitochondrial disease has increased day by day, and the situation can be improved according to the observation of individual situations.
   The doctor said that Sin-Ciao needed rehabilitation because of her low muscle tension. It was during the rehabilitation that they found that her overall development was quite slow - it was difficult for her to listen, speak, read, write, crawl and sit, she could not even remove a handkerchief put on her face by her hands.
   When she was one year and a half old, Sin-Ciao could finally sit on the floor supported by her hands. But she kept knocking into the floor with her forehead every day because of weak muscles and uncoordinated limbs. There were bruises all over her little fair face. During the crawling, her teeth were also broken, and even her chin was hit twice and sewed more than 30 stitches. However, these injuries did not prevent her from doing rehabilitation every day.
   At the age of six, with the help of a language therapist, Sin-Ciao finally spoke out the words, "Mommy, I love you", and her wish: "I hope one day I can walk to school and do homework, play the slide, sing and draw with other children.".
   At the age of nine, Sin-Ciao found suitable AIDS and began to learn phonetics. She didn't master Pinyin until the sixth grade of primary school. Finally, she could read. Although the learning progress of her was slow, Sin-Ciao's unique brilliance was not covered up.
   At the age of ten, Sin-Ciao wrote a poem in simple words: "With the dark clouds, comes the drizzle. I went to get my little blue umbrella, put on my raincoat and rainshoes, and danced freely in the rain. I was so happy. " And the poem showed her wish to walk.

A path of fighting the disease with mother by her side
On March 11, 2019, Sin-Ciao was diagnosed with another rare disease "Spinocerebellar ataxia 29 (SCA29)". So far, there are only 22 patients of this disease around the world.
   Lin Shukuan, mother of Sin-Ciao, said, "this is a very rare disease caused by gene mutation. There are few cases in the world, especially in Asia." But Sin-Ciao is very optimistic when facing the disease and has never lost her confidence or become depressed.
   It is certainly not that easy to be optimistic when facing such great challenges of life. Lin Shukuan recalled, "an important turning point of me appeared when Sin-Ciao was more than 2 years old. At that time, in order to facilitate speak learning, the doctor suggested to conduct an ankylotomy on her tongue. But in the otolaryngology clinic, before the mother and daughter were ready, the doctor started the operation. Sin-Ciao cried with pain, and she cried with her for caring so much for her. "
   At the moment when she broke down, Lin Shukuan said, "I suddenly felt that Sin-Ciao stopped crying and patted me on the shoulder with her little hand." This was the moment that her realized that her emotions would affect her child. She made up her mind to live happily every day and help Sin-Ciao to be an optimistic and cheerful personality.
   Once, Sin-Ciao asked her mother, "why do I get that rare disease?" Lin Shukuan answered, "Because you are a great child", and there are so many people love and help you. Not many people have gene mutations, the way she is chosen by an one-in-a-million disease is just as rare as the appearance of an angel, and bear the pain of the disease for others. In addition to making everyone better understand this rare disease, she also reminds many people that health is rare, so is life, please hold awe and love for life.
   Sin-Ciao also asked his mother, "when am I be able to walk?" Lin Shukuan answered, "Well, then we should continue to work hard for it." No matter how huge the obstacles are, she believes that as long as you work hard and never give up, "wait for long enough", you will find the bright spark inside children that can light up their future.
Use paintings to illustrate the inner world
  Sin-Ciao began to learn painting when she was 12. Shukuan said, "learning painting can not only restore the detailed muscles of her hands, but also express her wishes and inner world through colors.”
  Due to the incongruity between Sin-Ciao's eyesight and body movements, she first tried to draw with watercolor. However, since the brush was too soft, the whole picture was stained at last. Later, she changed to oil paint, and finally found the perfect material for herself.
  To control the trembling hand to draw with a brush is not easy for her. It takes 2 to 3 hours for Sin-Ciao to draw a small block, and it takes at least 2 to 3 months to complete a painting.
  But soon after she began painting, she showed great talent, and there are always rich and unique colors in the painting, with delicate strokes that carry her dreams.
  Sin-Ciao is determined to use her paintings to speak up for rare diseases patients and speak for her love of life.
  One day, the Economic Daily News provided a public welfare booth in Taichung International Exhibition Center. In addition to publicizing rare diseases, it also gave Sin-Ciao the opportunity to show her works to others and accept the public's appreciation and praise on the spot.
  Lin Shukuan remembered that on that day, a lady bought a painting from Sin-Ciao, and Sin-Ciao turned around to her, smiled and said happily, "Mom, it's so great to sell my paintings!" The sense of achievement from other's appreciation is the driving force for the disabled to live independently.
   Sin-Ciao has made progress thanks to the relationship between painting, fine body movements and cognition, and learned to observe the surrounding things. After learning painting for five years, she got an surprise, that is, the vision of her left and right eyes, which was 0.2 and 0.3 formerly, improve to 0.7 and 0.8 respectively.
   Sin-Ciao's favorite painting is the"Ballet Girl" because she has always hoped she can stand up and walk, and one day can even dance like the girl in the painting.
    Another painting is the "happy child", on which there is a polar bear mother walking on the ice with her baby bear. Sin-Ciao wrote in the caption part that, "I feel I'm just like a baby bear and so happy when with my mother."

Yu, Sin-Ciao has also won recognition from all walks of life at home and abroad
   The most valuable thing is that Sin-Ciao takes the initiative to strive for the opportunity to express herself in painting. It is also grateful for the kindness coming from all walks of life at home and abroad, so that more people can see the shimmer and shine of those patients, and hear the voice of their dreams, which allows more people to use their lives to drive other people's lives, in this way, we can fly together on the wings of hope and love.

July 2014 Joint exhibition in Kinmen
October 17, 2014  Joint exhibition in Taiwan Glass Gallery
April 2, 2015  Joint exhibition of art and culture exchange activities in Tokyo Shikamoto School, Japan
July 4, 2015  Joint exhibition in Taiwan Glass Gallery
July 25, 2015 Joint exhibition in Hsinchu cultural center
September 5, 2015 Joint exhibition in Taiwan Glass Gallery
October 6, 2015  Joint exhibition of FUKUZAWA Ichiro Memorial MuseumJune 1, 2016  Joint exhibition of Taichung SOGO culture and education foundation for children with rare diseases
October 5, 2016  Joint exhibition of Micron Technology, Inc. for patients with rare diseases
October 28, 2017, Joint exhibition of 16 flying postures in Taichung City Dadun cultural center
July 11, 2018 CSBC of Yunlin held the activity of "hearing the sound of dreams - flying with love" and used the paintings authorized by Yu, Sin-Ciao to carry out a towel charity sale. The income from the charity sale will be used to help the social welfare groups of slow flying angel in Yunlin County
October 27, 2018  Cross-strait little stars art and painting creation exhibition at Dequn Gallery, NTU
December 3, 2018  The solo exhibition of "Angel of rare diseases: Sin-Ciao - shimmering brilliance" at Taichung Culture Affairs & DR YEN’S DENTAL CLINIC & IMPLANT CENTER
January 18, 2019, the solo exhibition of "Angel of rare diseases: Sin-Ciao - shimmering brilliance" was held in the Taichung Armed Forces General Hospital Zhongqing Branch
April 26, 2019  Participated in the 9th Art Revolution Taipei of Taipei World Trade Center III, "2019 Art and Charity ·100 Celebrities"harity sale activity
July 16, 2019 "Angel of rare diseases: Sin-Ciao - shimmering brilliance" solo exhibition at the art and culture center of Changhua Christian Hospital
September 1, 2019 "Angel of rare diseases: Sin-Ciao - shimmering brilliance" solo exhibition of art highlights of Taichung Armed Forces General Hospital
November 1, 2019 The "Different" Flying Method aesthetic joint exhibition of the Taichung Armed Forces General Hospital Zhongqing Branch that helped students with art expertise